Saturday we were told that Josie's breathing problems are the result of her pulmonary hypertension - high blood pressure in the arteries of the lungs. Post surgery, her pulmonary hypertension appeared to be resolved but it has slowly reappeared. The next step is to find the cause of the problem so treatment can be administered.
An echo cardiogram was performed today and we were told that Josie will undergo another cardiac catheterization procedure later this week which will supply many more answers.
The poor kiddo has gone from 1/8 L of oxygen to 1/2 L to 1 L and now she has a feeding tube and a CPAP. Now tell me, would you be looking like this if you were in the same scenario?
In the ER
Oxygen, IV, and a feeding tube
Restrained with a CPAP, feeding tube, and IV
I'd be lying if I said she hasn't had her attitude moments (she yanked her feeding tube right out this afternoon), but all things considered, she's a model patient and we are so proud of her!
We'd like to thank everyone for including Josie in your thoughts and prayers. Your support means so much to our family. We'll do our best to keep you posted!