If I were keeping a baby book (this blog essentially IS the baby book), I would write down June 8, 2011 as the official day Josie no longer has to wear her nasal cannula when she sleeps. We got a call from her pulmonologist this morning. The results of her 3 day overnight pulse oximeter trend told him that while she still doesn't have healthy oxygen saturations (98-100) during a deep sleep, she keeps her saturations above 90 consistently and he is comfortable letting her ditch the night time oxygen. Woo hoo!!!!
Josie will still wear her pulse oximeter which is the probe that is wrapped around her foot (and tangled in her legs) and it will alarm if her oxygen saturation levels dip below 90. I semi-jokingly said that I will have her wear that until she goes to high school. It helps ME sleep better!
No worries - her legs and wire are tucked safely into a swaddle wrap overnight so she can't get too tangled!
Of course the big, ugly oxygen tank will remain next to her crib because should she get so much as a stuffy nose, she will need oxygen until she recovers. Whatever it takes to make our sweet girl breathe easily is fine with us.
No, your eyes aren't playing tricks on you - her crib mattress is on an incline.
For now, we celebrate because we've turned a corner! Josie's lungs are improving and we are so grateful for that! You go girl!
That's great news! We had oxygen for Samantha at home for about 2 weeks after her open heart surgery, and I have to say, it was the longest two weeks of my life, I think!! Wow. Glad your sweet girl is doing better!!ReplyDelete
YAY! I love those little piggies of hers!ReplyDelete
Addiosn was on 24 hours of oxygen for nine months...so I feel your pain...and your rejoicing that it is now gone. YAY! Congrats on the huge milestone, Josie!ReplyDelete
Woo hoo!!! I remember that day well with Addy too!!! Such a great feeling!ReplyDelete
That is very exciting!ReplyDelete