Thursday, July 19, 2012

Operation Feeding Tube Freedom

Today was a good day.

I don't want to say too much because I don't want to jinx it, but this could soon be a part of Josie's past:
...because Little Miss JoJo is working really hard to get off the feeding tube.  And she now consumes all but 5oz of her daily calories orally!  We have been desperately seeking an effective path to G Tube independence for more than a year now and there is finally light at the end of the tunnel!  Hallelujah!!!

We took a little road trip to visit Josie's GI doctor today.  This particular trip was speeding ticket free (woo hoo!  Go me!) so that was reason alone to celebrate.

As usual, Josie tried to ditch her shoes anytime I turned my head. Here she is attempting to put them back on after her 400th lecture from mom.
 Josie was a very good girl for the hospital staff.  She was eager to discuss anatomy (by identifying her body parts), pop culture (by requesting both "Call Me" and "The PiƱa Colada Song") and she enjoyed exploring the functionality of the medical equipment with the resident.  I've never seen the doctor hand their medical devices to a toddler and I cringe to think of how much they probably cost, but Josie truly enjoyed the experience.
After receiving such promising news about the widely anticipated end of our g tube days, Josie and I decided to celebrate.  We paid a visit to the mall food court where she enjoyed some delicious curly fries.  We normally avoid fried foods but this was a special occasion and Josie loved it!  I loved watching my little girl consume food (and even a little bit of milk from a straw) like every other kid in that food court!
We decided to escalate the celebration by taking a little ride on the Merry-Go-Round but after further consideration, I nixed that idea so we opted to just pose for a photo by it.  Shoeless JoJo strikes again:
When we returned home, Travis asked me why we didn't actually ride the carousel.  I explained to him that I didn't know what to do with the stroller and my purse and that I didn't want anyone to steal them.  He laughed and said that Dateline isn't exactly doing exposes on the rampant rise of stroller theft at community carousels in the Midwest and that we probably would have been safe.  But hey, that's why he's the laid back one and I'm the neurotic one. 

While I'm hesitant go into further detail about Operation Feeding Tube Freedom because I don't want to speak too soon, I assure you that more information will be provided once our goal has been achieved.  As a desperate parent who spent many hours scoring the Internet for information on how to get my child off the g tube, I am happy to share any details of our journey that can possibly help someone else in our shoes so stay tuned!


  1. SOOOO proud of Josie girl and so extremely jealous!!!! I keep trying not to give up but some days it seems Addy is going to have this darn thing forever!

  2. Go Josie!! We too fought the good fight to get rid of that darned g-tube. It can be done! :) Our little guy still doesn't eat all that well (picky picky) but life is still easier without that thing. Hoping you can get rid of it soon! :):)

  3. Yippee! And more info soon, please. The little one I am adopting has a g-tube and is not taking much if anything orally now. She is two.

  4. YAY can't wait to hear the news that she reached her goal and is toobie free!

  5. I just saw an amazing documentary called I Love Special Olympics on the BBC which made me think of you guys (Leanne especially!). I don't think you can get iPlayer in the US but it might be worth a search anyway.... x

  6. Since you moderate comments anyway would you consider getting rid of the word verification. I just hate them! THanks. :)

  7. Consider word verification gone. I didn't even realize our blog had it. Thanks for letting me know, Melissa!