Showing posts with label Josie. Show all posts
Showing posts with label Josie. Show all posts

Sunday, August 25, 2013

Josie's Summer Paradise

Since Mom and Dad have been spending every evening over at the condo getting things ready for Mama Hop & Aunt Leanne's visit next month, we haven't had as much family time as usual.  So we decided do something fun together on Saturday morning.  The obvious choice was our local splash park. 
 
The girls absolutely love the splash park - especially Josie.
 It should come as no surprise since we already discovered the water-induced euphoria that is our water activity table.  The splash park takes that to a whole new level!
 There is nowhere else to witness Josie participate in this much gross motor activity with a gleeful expression plastered across her face. 
 Of course we would expect Merryn to prosper in an environment like this.  
 Eyes shut
Mouth open
Run
Repeat
 This environment beckons every kid to be a fearless little force of nature - even Josie.  Just look at her wandering around like she owns the place!  All signs of her gross motor allergy were washed away and her signature "No, please, no!" was not uttered once...
  ...Well, maybe once...when she decided to plop face-down where the water accumulates near the drain to indulge in her obsession with blowing bubbles...
...until Dad came along and ruined all the fun.  Sorry, JoJo.  Let's just hope that run off from everyone's grubby feet is adequately chlorinated.  Ick!
 Suffice to say, even that couldn't burst her splash park bubble. 
Here's to hoping Josie likes winter sports this much!  I happen to know a medal-winning Special Olympian who can teach her how to snowshoe.

Thursday, August 15, 2013

Ready for Rio...kind of

This summer, in an attempt to help Josie overcome her aversion to gross motor activities, we enrolled her in gymnastics.  You can read about that HERE.  The update goes as follows:
 
When we arrive at gymnastics - like when we pull into the parking lot - the opposition starts.  The degree of resistance varies from whimpering, whining, Josie's classic expression "No, please, no!" uttered repeatedly, and maybe a little tear shed.

As a parent, of course this is difficult to witness.  But I cope by filing it under "the unpleasant things we make our kids do because it's good for them in the long term," like getting vaccinations or eating vegetables.  There's also great solace in the fact that Josie is in the impressively competent hands of the unflappable "Coach Nate".
 
Coach Nate displays a remarkable ability to navigate Josie's emotional distress with a beautiful balance of firmness and sensitivity.  He believes in Josie.  He calls her "Super Josie".  He swoops her up and whisks her off, and you can almost feel the breeze from her imaginary cape as she soars off into the gym...
During her gymnastics session, Josie has the opportunity to perform amazing feats that she would never attempt at home - like climbing a rock wall...
...or rolling around in a tunnel.  Do I spy a smile?

 Coach Nate doesn't demand perfection.  The operative word is "try".
 And the endeavors that Josie completes during gymnastics, as insignificant as they may seem to the parent of a typical 3 year-old, bring tears to my eyes.  Seriously - this kid does not climb on furniture.  She has NEVER climbed on the sofa.  And yet she scaled this ladder, and with minimal assistance, got herself up on the trampoline.
 Every week, Josie's 2 year-old sister, Merryn, does this repeatedly and effortlessly during her gymnastics session.  But for Josie, this is not effortless - it's monumental!  And every week Merryn gleefully runs/hops/bounces down that trampoline and catapults herself into the foam pit and digs herself out only to do it again and again...today, Josie did it, too.  It took her longer, she was more hesitant, and she required assistance, but she did it!
 The ultimate reward for a whole lot of "try" is a super cool stamp that Coach Nate has learned to place anywhere but on Josie's hand, because it will immediately get Purelled away as soon as Mom greets her at the end of her session.
 
Freshly inked and feeling invincible, Super Josie gets on her Harley and rides off into the sunset...
Just in case you were wondering about Josie's unconventional gymnastics attire, here is the rundown...
We've developed a routine of doing post-gymnastics interviews just to reinforce the fact that Josie survived and is better for having overcome her aversion to her Thursday morning torture...

...And now she's ready for Rio...kind of.
 
 

Sunday, August 4, 2013

Mama Hop's Flamenco Photo Shoot Fiasco

Mama Hop loves to travel.  She recently returned from a Mediterranean Cruise and she hand-delivered souvenirs for all of us with the exception of one.  One souvenir was too good to wait so Mama Hop shipped it directly to us as soon as she landed back in the States: little red and black Flamenco dresses from Spain.  She even included a CD that she'd burned herself (no small feat, mind you) of Flamenco music to go along with the gift.  She wrote a note saying that she thought the girls would love dressing up and dancing to the Spanish guitar.  She thought it would make an awesome photo op.  She pictured this:
 She got this:
Somehow there was a disconnect between my mom's vision of a couple of castanets wielding, cosmopolitan toddlers happily twirling around in their ruffly red dresses and the genuine reality: Josie's got an extra chromosome chalked full of stubborn and she just wasn't feeling the rhythm that day while the only thing Merryn was feeling was...well, Thelma.

Dead are Mama Hop's dreams of bragging that her granddaughters are Carlos Santana's backup dancers...or even cruise ship entertainment for that matter.  They're just good old, all-American, bright-eyed, strong-willed, ornery, energetic, uncooperative, spirited,  obstinate, toddlers in itchy polyester dresses.
 

Sunday, April 14, 2013

Wild Weekend (for us)

A friend recently complained that our blog isn't updated frequently enough.

Guilty as charged.

I will say that if you're not getting enough of your CCE fix here on the blog, you can find almost daily updates (including way more of #HurricaneMerryn 's oh-so-entertaining antics) on Instagram.  But for those of you who aren't on the Instagram scene, here's a little recap of our adventurous (yes, this word is relative) weekend.

While I'm not a paid endorser (wouldn't that be grand?!), I will issue a friendly public service announcement that it's Gymbucks season at Gymboree!  I hate it when I accidentally miss Gymbucks time.  Thanks to generous Gymbucks donations from YaYa and our beloved friend, Aleksandra, I got a whale of a deal on summer clothes for my little ladies who are nearly overlapping in size.   

In non-munchkin news, Travis and I enjoyed a great date night on Saturday.  Not knowing when we'll have a chance to do it again, I warned the sitter that we would be out late (which for us old married folks is 9pm - 10 if we're feeling really wild!).  We ran a few errands and then had some dinner at this fun little Mexican restaurant.  Afterwards, we decided to enjoy a drink at the lovely wine bar next door.  I grabbed a table on the patio while Travis went in and got drinks.  When he returned, I told him it was too chilly to sit outside so we moved our little tête-à-tête indoors.  Not realizing I was right behind him (where else would I be?!) with my generously poured glass of Cabernet in hand, Travis grabbed a chair to pull it out for me (so chivalrous) and his elbow knocked my full glass of wine into my face!  I was literally soaked in red wine!  I stood there in mortified shock as vino dripped from my face and hair while Travis issued repeated apologies through his laughter.  Romance, folks.  Pure romance.  Needless to say, date night turned into catching up on our DVRed shows on the sofa.
 On Saturday, we packed up our little ladies and went on a little road trip to a fun college town about an hour away.  We had a delicious lunch at a marvelous Italian restaurant but the big draw - are you ready for this? - was Costco!   That's right.  We drove an hour to go to Costco.  It's our idea of a fun Saturday.  This is an exciting life we lead.




I was hoping to top off our little road trip with a brief stop at the outlet mall but unfortunately, Josie's attitude would not permit that.  The only way we got through Costco was by me blaring "Rolling in the deep" from my phone.  At that point I wasn't really concerned whether the other shoppers were Adele fans or not.  I would have proudly blasted the tune from an old school boom box on my shoulder if it would have silenced her whining.  Between that and my eager photography (you would've thought I was a tourist at one of the 7 wonders of the world instead of a shopper at a big box wholesaler in the Heartland), Travis pretty much pretended like he didn't know us the whole time. 
But overall, we had a fun weekend and the blog has been updated (just for you, Helena!).  Tune in tomorrow because Mama Hop and Aunt Leanne are going to squeeze in another visit before we pack up and move 12 hours away.

Monday, April 8, 2013

A Stroll Down Memory Lane

Our impending move is quickly approaching and even though we've moved many times in the past, this time is different.  Moving is always an emotional experience.  Leaving the wonderful neighbors, colleagues, and friends we made in various cities is always hard.  But those other moves never came close to eliciting this degree of sentimentality.
 
Our lives changed dramatically in the past four years that we've lived in this home.  We went from being two carefree young professionals to being parents.  We became a family in this house.  We brought our babies home to this house. 
 
This is the family room where Josie sat perched on her trusty, giraffe-print, circular mat, for months and months and months (16 to be exact) until she became mobile.  Meanwhile, Merryn was perched on that mat for about 30 seconds before she decided she'd rather be on the go and into everything, actively challenging my OCD with her hurricane force energy.
 
This room is my favorite.  It started as an office and we decided to turn it into a playroom when we became pregnant with Merryn.  Adorable hot air balloons created by Travis (aka "Crafty Dad") adorn the wall as the morning light floods in through a big window flanked with soft green curtains.  The girls spend most of their day in this room, reading books, having picnics, and dancing along with the singing animal collection.

This is our patio where a big, beautiful hackberry tree shelters us from the summer sun and holds a little red baby swing that has evoked countless gummy grins.  On this patio, the unmistakable sounds of a Midwestern summer evening fill the air- cheers echoing from the softball game at the park across the street, and the faint melody that trails from the ice cream truck as it beckons neighborhood children.  This is where we've fired up the grill, watched fireworks, and had many late night talks over a couple of beers after the girls are fast asleep.
 
At the end of the hall is the nursery where our girls sleep side by side every night.  Its decor is gender neutral, strategically designed to be equally welcoming to either a boy or a girl when we got the call that every adoptive parent yearns for.  A giant oxygen tank and pulse oximeter serve as poignant reminders of the arduous journey that Josie traveled from her days as a medically fragile infant to a thriving toddler.  Many a bedtime story has been read in that cozy brown rocker and many a morning fist bump has been extended between those cribs. 
 
Like most formal dining rooms, this one was only used on holidays but those occasions held the most significant memories.  At this dining room table, we announced our intentions to adopt a baby with Down syndrome to my mom and sister.  One year later, that precious baby sat in her daddy's arms at this same table, surrounded by the adoring gazes of a family who was profoundly grateful for the blessing we had received.  This is where we proudly displayed our pint-sized Christmas tree and nativity set every December, and it's where we exchanged the gifts we'd lovingly selected for each other on Christmas morning.  This is also where we shared our last meal with my dad, who was painfully weak and frail from cancer, but he was determined to fulfill his promise to join us for Thanksgiving.
 
On one level, it's just four walls and a roof in a family-friendly neighborhood in a wholesome Midwestern town; a mere real estate listing consisting of bedrooms, bathrooms, and square footage.  But to us, it's a sanctuary where we laughed, loved, lost, and realized our dreams.  And the gravity of that, my friends, cannot be underestimated.
 
Going forward, we will establish another sanctuary.  We will share new experiences.  We will realize new dreams.  But this stop along memory lane will always be sacred and forever cherished.

Friday, March 8, 2013

A miracle in our darkest hour

The other night I received an email from my blogosphere buddy, Patti, from A Perfect Lily, asking me to do a guest blog post about the most agonizing thing I've ever lived through - nearly losing Josie.  The death of a child is the most excruciating pain one can feel and in August 2010, we were told to prepare ourselves for this experience.
 
My initial reaction was to decline.  I do my best to avoid those terrible memories.  I can't even look at photos of Josie from those days.  I don't think about it, I don't read about it, and I don't talk about it. 
 However, Patti's email explained that the reason she wanted me to share our story was to offer encouragement to another family whose daughter, Emma, has been given a bleak prognosis from doctors.  Patti was an avid blog follower (and more importantly, a devoted prayer warrior) during that time and she thought our experience could offer hope to Emma's family and to other families as well.
 So, I reluctantly agreed and I let the words pour out stream of consciousness style.  And as much as I dreaded confronting those memories, the process was extremely cathartic for me.  It helped remind me of the overwhelming amount of love, support, hope, and faith that surrounded us during that time.
 And even though we stood at the door step of our own personal hell, we ultimately became the recipient of one of God's miracles and for that, we are eternally grateful.
I smiled when I found a passage I wrote when I informed blog readers just how dismal Josie's prognosis had become:
 
We remain hopeful as we wait. We pray that each day we are greeted with the subtle improvement Josie demonstrated today. I anxiously await the day I can blog to tell you that she is off the ventilator...and that she's out of the PICU...and that she gets to go home...and comes back to punch Dr. Doom & Gloom in the face (Travis' idea, not mine). With all the love, support, and prayers that surround our sweet baby, we know she will recover. We've got BIG plans for this kiddo!
 
Please take a moment to join us in prayer for Baby Emma and her family.
 
To read my contribution to Patti's "Grief, Hope, and Miracles" series,
 
 
 
 


Wednesday, January 16, 2013

Gross Motor Progress: The Hokey Pokey

Down syndrome is often characterized by developmental delays and Josie's most significant delay is in the gross motor category.  While she will take a few celebrated steps, walking is still not her main mode of transportation.  Even though we are confident she will be a full-fledged walker someday, the sloooooow pace of her progress is, admittedly, frustrating at times.
Josie's PT brought over a pair of Stabilizing Pressure Input Orthosis pants (AKA "Spanx") and Josie has been wearing them frequently.  They do seem to make her more confident in her movements.   Another major motivator, across the board, is music.  Josie lives for music!

This morning, sporting her SPIO pants, Josie gave a rousing demonstration of her gross motor "skills and abilities" (two big buzzwords for Leanne, hence, a long-standing inside joke here at CCE) in the form of the classic "Hokey Pokey":
Talk about proud!  Girlfriend did her thing!  She braced herself when necessary and when she fell down, she got back up! 

Strangely enough, she kept moving throughout the song almost as though she were on a bike knowing that if she stopped peddling, the bike would tip over.  Travis attributes it to the Law of Inertia - an object in motion tends to stay in motion.  I'm not sure Josie's gross motor delays can be explained by the laws of physics or just a healthy fear of falling combined with a deep-seated need to exert her 2 year-old autonomy by reminding us that she will walk/run/Hokey Pokey when she's good and ready and not a second sooner, thank you very much.  Either way, my heart bursts with pride (and laughter) and Josie's Hokey Pokey skills.  Go JoJo, go!

Wednesday, September 26, 2012

Role Reversal

Josie's baby sister, Merryn, sometimes gets a bad rap around here.  She has a reputation for being a crier bit on the emotional side and to some degree, she's earned it.  Aunt Leanne has even been known to call attention to it and we all know that Aunt Leanne is nothing if not honest.

But during today's photo shoot, there was a bit of a role reversal.  You see, Merryn was perfectly pleasant.  There were so many photos of her smiling, that it was difficult to narrow it down to just one.
Merryn's sister, on the other hand, was in no mood to put the "jovial" in Josie.  If people with Down syndrome are known for their happy dispositions, then Josie's membership to this exclusive club is about to be revoked.  There was zero inkling of happy today.  

There was...
Irritable

Pouty

Melancholy

Angry


Talk-to-the-hand-ticked-off

and the one that will be set aside for blackmail someday...
Boogered & bitter

...but definitely no "happy".  

Who knows - maybe she's a Michigan fan.

Tuesday, September 25, 2012

Josie JoJo: From skill mastery to mom mockery

We've put Mental Health Week behind us and it's back to business as usual around here.  This means working on our skills & abilities, like flashcards at breakfast...
Josie loves learning her letters.  It's her incentive to drink.

...and more alphabet practice during bath time.

 Josie says "D is for Dad"

Josie is still working on walking...
She's usually not this enthused about it

...with the help of her walker and Sure Steps.

Self feeding skills are important.  Josie demonstrates proper use of a fork:

 But even though Mental Health Week is over, we are committed to integrating the basic principle behind the movement (Don't you love how taking one week off of therapy at our house now constitutes a "movement"?  Play along.) by taking time out to relax and have fun:

As always, Josie has new antics to showcase including doing a killer mom impersonation.  I never realized how much I used hand gestures while speaking until Josie came along to mock me.
Stay tuned - you never know what she'll come up with next!